Showing posts with label CTF. Racing for reaserch. Show all posts
Showing posts with label CTF. Racing for reaserch. Show all posts

Monday, November 14, 2011

Hi! I am so busy around here that only now I am posting some Halloween pictures.
This year Brenda wanted to be Rapunzel. It was my first time sewing a princess costume. I used a Simplicity pattern.
We did a lot this Halloween. We  went to Disneyland.
And to our church's party.
Brenda had the school parade and class party on Halloween morning. Of course she went trick or treating at night.

She had the chance to wear her old witch costume at the school fundraiser party on the Friday before Halloween. I got a picture before we left.

This year our pumpkin was turned into a witch.
With spiders on her hair.
 We had some yummy treats, like this chocolate coffin our friend Jodie and her kids made for us.
How cool was that?

Around Halloween Brenda's best friend was baptized.
I made her a CTR towel. You can see more about CTR towels on this post .

On the weekend after Halloween  we went to the Children's Tumor Foundation's San Diego walk.

It was a fun event ! To learn more about Neurofibromatosis (NF) and how you can help, please click here .
Time goes so fast. I have lots to do before Christmas.
Right now I am working on knitted hats and quilts that will be donated by our church women's group to shelters in our area.
Thanks for stopping by!
 Ana Paula.

Wednesday, February 2, 2011

Race day party and new followers!

Hi!
Saturday we went to one of  the Children's Tumor Foundation local events.
The Children's Tumor Foundation is a non-profit 501(c)(3) medical foundation, dedicated to improving the health and well being of individuals and families affected by the neurofibromatoses (NF).

What is Neurofibromatosis?
Neurofibromatosis encompasses a set of distinct genetic disorders that causes tumors to grow along various types of nerves.  NF can also affect the development of non-nervous tissues such as bones and skin. Neurofibromatosis causes tumors to grow anywhere on or in the body.

My little girl has Neurofibromatosis 1, as some of you may know.
She has no tumors. We pray everyday about that. But she has bone deformity, or pseudoarthrosis on her right leg. This means that her tibia was very week, and as she started walking the bone could not handle her weight anymore. She broke her leg two times. It was a very difficult time for us.
At  two and a half years old she had a surgery to correct her leg.
We have no NF history on our family. Brenda's condition comes from a "spontaneous mutation".
To make a long story short, she now is 6 and a half years old, and has a pretty "normal" life.
She wears a brace to protect her leg, and has some  restrictions that are very difficult for a first grader.
She can't run or jump, go on the slide, swing or monkey bars. The risk of breaking her leg still there.
Many days she comes home from school and tells me that nobody wanted to play with her. It breaks my heart. I try to make her understand how the other kids like her but also like to run and jump.
The school  makes special adjustments for her on PE classes and other activities.
So, we have a little china doll, she is beautiful and we love her.
We don't know what the future will bring. She has a "mild" case. But things can change. NF can bring many issues. We trust the Lord and she is on His hands.

The foundation has a car that is every year at the 24 hours of  Daytona for their Racing for Research program.
Saturday, the local chapter had a party here at the  Los Angeles area.
The raffle table. See my Valentine's Basket there?
Brenda, Kelly ( the Foundation's representative at the Los Angeles office) and Ray, another NF hero.

Brenda and Ray helping with the raffle.

Some of the kids making bubbles.

The race is over and it was a success, but the "race" against NF is everyday.
Next year the car will be at the 24 hours of Daytona again, and we will be fundraising  for this and other events through out the year. One day they will find a cure.

Now, the swap party!
Amy, from Petal picking designs is following me...and I am following her.
She has many darling projects on her blog.

Jordan, from Military spouse house is a very creative lady. Many great ideas on her blog.
She is following me, and I am following her now.

That's how the party works: I follow you,  you follow me.

Here is the link for the Swap party again. Please join us.








Thanks for stopping by.

Ana Paula

Saturday, January 29, 2011

Valentine Hat and Scarf

Hello!
Today I want to show you a set of red hat and scarf I made to donate to the Children's Tumor Foundation.
Every year they host local little parties on different parts of the country to watch the 24 hours of Daytona race.
The Children's Tumor Foundation has a car on the race with the purpose to raise money for reaserch and  awareness to Neurofibromatosis.
My daughter Brenda has Neurofibromatosis 1.
We try to help participating in events, raising money for reaserch any  way we can.
So, I decide to make the hat and scarf set  to be used on the raffle at our local party today.
It a very simple set, fast and easy to make.
For the hat, I used a loom from Provo Crafts. I love these looms. I have made many  hats just like this for charity events at my church.
I used Homespun and Fun Fur from Lion Brand for the set.
I made the scarf using regular knitting needles.
I put the hat and scarf  together with some Valentine candy on a little wire basket from the Dollar Tree .
And here it is, ready to go! I hope this can help the event today.
Thanks for stopping by,
Ana Paula :)